What a week this one has been. I didn't think this blog would ever get this personal but I need to purge and I have so much to get out. You know those types of weeks or even those days...those moments that change your whole life...Well I had one of those. I'm going to back up to explain it all cause I just need to get it out of my system. I am about put on my writer's hat for just a few minutes.
|Naima at the doctors office. iphone pic.|
So: Lately Naima (my daughter) had been urinating frequently and being excessively thirsty. I mean, she would pee about 3 times in one hour. And she would ask for something to drink, then drink the entire cup, and then minutes later she would be insisting that she was thirsty. I knew something wasn't right but couldn't put my finger on it. The urination pattern started a week prior to the thirst pattern. It started slowly, but suddenly at the same time. She would have to go to the bathroom frequently. One day she had to go and we were in the car so I told her she had to hold it until we reached our destination. When we got there, we rushed her to the bathroom, only for her to get right in front of the toilet and pee on herself. I mean right in front of the toilet. Obviously I was upset (as the pattern hadn't quite set in and I didn't know yet that there was a reason for this). I made her sit in time out for like 10 minutes or so and looking back now I feel so bad because I realize that she couldn’t help herself. Fast forward a day or two and we are at the arboretum for a jazz fest and she had to go to the bathroom about three times. Once was right when we left and then we drove maybe 20 minutes to a restaurant to get something to eat and she had to pee again right when we got there. It was after 8 so I didn't let her have anything to drink (only a sip to wash down her food) because since she was going to the bathroom so many times in the night (once 3 times in 1 hour) and a couple times peeing on herself in her sleep, she couldn’t have anything after 8 thinking that would prevent the pattern. It didn't. All these things were odd, and I made note of it, but I thought that she was just drinking too much during the day and that is why she was urination so much. She had been potty trained since she was 2, so the peeing in the bed thing was highly unusual. She would even pee on the sofa if she fell asleep there. It started to become obvious that she simply couldn’t control her urine in her sleep and not that she was just having accidents. It wasn't until the thirst pattern began when I knew something was really wrong. I begin to suspect that maybe it could be a UTI. This was towards Friday and I had to work the weekend and so I decided to hold off and see if the pattern continued a few days and if so I would make her a doctor’s appointment. The pattern continued and the thirst pattern over the weekend grew intense. Monday morning I had two photo shoots scheduled so I was like I'll make the appointment for Tuesday. The early one got cancelled so I decided to go on and take her in and that I could drop her off home (my mom happened to be off that day and her daycare was closed this week) and then go to the second shoot. It turned out that when we got to the doctors and I explained what was going on, the nurse asked if anyone in my family had diabetes. I said yeah, several (type 2). I couldn't fathom that Naima would be at risk based on that, as theirs was all more lifestyle related--and Naima's lifestyle was at least slightly better than the average kid her age. She wasn't the healthiest child by any stretch. We both skimp on veggies sometimes, but we ate lots of fruit and I did my best to limit her junk food consumption-particularly at home (though that was often a battle with my mom always buying things I asked her not to and Naima wanting and often getting those things. Things like pop-tarts and fruit snacks. I had just stopped fighting it long ago. Also her daycare snacks were horrendous on most days-but that too was a battle I didn’t have the energy to fight-so I just let it be, and when I could I tried to get there early enough to get her before snack time).
Anyway, after checking her urine and a blood glucose reading, they sent us straight to the ER. I cancelled my shoot and scooped up my mom and we took her straight to the hospital. We were there for a while and they concluded that she had type 1 diabetes. I went numb. I couldn't believe it. At the doctors her blood glucose was 500 by the time we got to the ER and checked it was at 600. They admitted her and we were there from Monday until Thursday night.
|In ER. Nurse drawing blood from her IV tube. iphone pic|
I must say first that Naima was a soldier. She handled everything with so much class...it was really amazing. She lightened up everyone's day in the hospital. They couldn't stop raving about her. She was so still for the needles and didn't cry not once. Well not about the needles anyway. When she did cry, it was because she couldn’t have something she wanted to eat. That was the hardest part for me…and still is. Restricting food to a 3 yo who doesn’t understand why she can’t have XYZ is not an easy task.
|She didn't really need this band-aid. But it made her feel better. It was Dora! ;-)|
The hospital stay was stressful to say the least. They were not able to get in her a normal range. She kept jumping from high to low blood glucose levels. It was either the first or second night where she was very lethargic. I just assumed she was sleepy and was tired from such a long day. The doctor noticed that her lips were pale and it turned out that her glucose was low they had to give her juice, then next morning she was back high again. I just couldn’t make sense of it all.
|Naima eating her breakfast and watching TV.|
|Smiling for the camera. She didn't let nothing steal her joy!|
|Naima in the playroom. She spent most her day here.|
|Naima in the play room with Mrs. Laura. She is practicing giving shots to the doll. Mrs. Laura did a lot of educational activities with Naima to try and help her understand what was going on with her.|
|Naima blessing her food.|
|Naima took many rides on her IV cart.|
I don’t want this blog to be a book, so I will end this one here and talk about life at home in another post. I will add though, that Thursday night, two members of the ministerial staff of my church came by the house to pray for Naima. Even though we are dealing with the diagnosis, we are also praying and believing in God that she can and will be healed—in his time, if it's his will. By faith, it is already done.